E11- Exploring Informed Consent in Medicine by London & Junelle

Welcome to the show where we stretch Ben and occasionally breathe. Not the rules. That was in 1950s. We're just here to talk about it. Henrietta cells did more flips than small bites. And with about the same level of concern as the toddler being told is bedtime. Today we're exploring one of the most important ethical issues in modern day medicine and medical interactions, which is a form of concern. Through the story of Henrietta Lacks, who cells became the first immortal human cell line without her knowledge or permission. In 1951, doctors at John Hopkins took tissues from Henrietta Lacks during cancer treatment. She was never told, never asked, and never give the chance to consent. Those cells transformed medicine by her family lived in poverty for decades. Her story first is a circumfered and central question. What does it mean to truly respect a patient's consent? Informed consent means a patient's understands what's being done, why it's being done, the risk alternatives and what's being done. And that's how they have the right to refuse. And Henrietta never received the opportunity. Today during our podcast we'll be interviewing two people. Hi, my name is London. I'm here at my home in Chetalga. And can you explain to me the story about how I was born and the hospital might happen? Well, I was a week past my due date. So they scheduled a to get in for me to get induced. I went into the hospital, I believe like a six in the morning. So they prepped me for what's about to come for the medication, and all that's now. They had me on the monitor. And they kind of noticed that the baby was under his own distress. So they brought in the anesthesiologist with a form, with a consent form, from the design just in case of an emergency. In case I have to be rushed into the OR, because it's supposed to be a planned natural. By birth after the end of the year. So after our assigned the consent form was a little bit confusing because I didn't expect it to have to sign a consent form for it, because I didn't expect any emergency to happen. I went through the whole evening process. And in the morning they realized that the baby had a, you had a cord wrapped around your neck, so they rushed me to the OR. And you were born like a two in a two in a one in a one. I all clearly was the process explained to you when you were given the consent form. Was it really clear or did you feel a little confused on either side? The explanation was pretty clear. I was just shocked because I really didn't think ahead of time that an actual, in the emergency could happen. I wasn't really thinking about that. I wasn't planning on that. But they explained it to me. They were never pretty. Would you change anything for the OR or how you consent? consent to say no. Not really. I thought it was the end of the period. No, yes. It's a distinction in principle. Can you share an experience where you were asked to get consent for a medical procedure or studies? When I went to the OR, the dawn is to go get back reason on the ass like you. My mom and I were concerned with their doing. Yeah, we're just putting on our brain. How clearly was the process explained to you on how to affect your decisions? The process was explained very clearly. They told me everything that they're going to do. They told me that they're going to be asking for a medical procedure or more of that side. I felt like I was more safe. I was so happy to give them consent. No, I didn't feel some sort of pressure. They made sure that I was part of the thing. What should she have spoken about? In my opinion, I think it just always depends on the person and the staff. Can Rihanna Lacks gave the world an extraordinary gift? Once she never knew she gave it. As well technology advances faster than ever. Her story reminds us that ethics must involve alongside innovation. We owe her a commitment to inform consent, transparency and justice in every corner of modern medicine. Thanks for listening to Bioethics on Rout. Join us next time as we explore the ethics of AI and health care and what it means for the future patient anatomy.